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AYA - current status in CCE centers

Survey to gather information on the current status and initiatives on early-onset tumors in adolescents and young adults (AYA)

Dear collegues,

within the Cancer Core Europe TRYTRAC program we would like to build an AYA networking project to understand and finally improve cancer care for young adults at the CCE centers. With this survey we would like to gather information on the current status and initiatives on early-onset tumors in adolescents and young adults (AYA). We would appreciate your information and would like to ask you to share your insight about your center with us.

Please contact Kaiyu Xu (kaiyu.xu@stud.uni-heidelberg.de) if you have any questions.

Basic Information

Name

E-Mail

Your position

Your background and experience

Name of the center

Does your cancer center have a specialized AYA unit/team?

Choose one of the following answers

Yes
No
Not aware
No answer

Please share your experience with AYA patients

	Tumor entity	youngest patient seen	oldest patient seen
1
2
3
4
5
6

AYA Infrastructure

Does your cancer center have specialized AYA programs?

Choose one of the following answers

Yes
No
Not aware
No answer

If yes, please provide a brief description of the AYA program or specialized unit/team

	Program 1	Program 2	Program 3	Program 4
Name of program or specialized unit/team
Focus/Objectives
Which AYA entity are you referring to
What age group are you referring to

Are there any specific infrastructures in place to support AYA patients?

Select all that apply

AYA-specific clinic or treatment area
Multidisciplinary AYA care team
Psychosocial support
Social worker
Fertility preservation program
Rehabilitation
Biobank in AYA-units
Other:

Are there any ongoing clinical trials focusing on AYA cancer?

Choose one of the following answers

Yes
No
Not aware
No answer

If yes, please provide a brief overview of the trials open in the last 5 years (2018-2022) with both pediatric and adult populations

	Trial 1	Trial 2	Trial 3	Trial 4
Name of trial
Responsible PI
Focus/Trial objectives
Which AYA entity are you referring to
What age group are you referring to

Are there any specific research lines/projects on AYA cancer?

Choose one of the following answers

Yes
No
Not aware
No answer

If yes, please provide an overview.

	Project 1	Project 2	Project 3	Project 4
Research project
Research group theme/name
Research leader
Focus/Project objectives (e.g., biology differences, survival differences, molecular differences)
Which AYA entity are you referring to
Local/national/international
What age group are you referring to

What are the causes of AYA focused research or not? (Please select all that apply)

Choose one of the following answers

Not aware
Tumor type infrequent in AYA
Specific AYA tumor type
Specific grant/finance for AYA cancer
Other
Other:
No answer

Please share any additional comments or insights related to AYA cancer care in your cancer center.

Vision and Future Plans

Are there any future plans in place to improve AYA cancer care?

Select all that apply

Expanding the AYA program
Increasing AYA-specific research
Developing partnerships with other cancer centers or organizations
Implementing additional supportive services for AYA patients
Other:

Please confirm you want to clear your response?